{"id":3545,"date":"2024-07-18T15:07:40","date_gmt":"2024-07-18T15:07:40","guid":{"rendered":"https:\/\/bobea.net\/?p=3545"},"modified":"2024-07-18T15:07:49","modified_gmt":"2024-07-18T15:07:49","slug":"etre-mere-dun-enfant-autiste-le-combat-quotidien-dalexandra","status":"publish","type":"post","link":"https:\/\/bobea.net\/index.php\/2024\/07\/18\/etre-mere-dun-enfant-autiste-le-combat-quotidien-dalexandra\/","title":{"rendered":"\u00catre m\u00e8re d\u2019un enfant autiste : le combat quotidien d\u2019Alexandra"},"content":{"rendered":"\n<p>Alexan\u00addra, maman d\u2019Arthur, 10 ans, nous livre un t\u00e9moignage poignant sur son par\u00adcours de m\u00e8re d\u2019un enfant autiste. Entre cul\u00adpa\u00adbil\u00adit\u00e9, inqui\u00e9\u00adtudes et moments de joie, elle nous racon\u00adte com\u00adment elle a appris \u00e0 voir la dif\u00adf\u00e9rence comme une richesse.<\/p>\n\n\n\n<p>Une pre\u00admi\u00e8re ann\u00e9e sans soup\u00e7ons<\/p>\n\n\n\n<p>\u00c0 la nais\u00adsance d\u2019Arthur en ao\u00fbt 2014, rien ne laisse pr\u00e9sager de trou\u00adbles autis\u00adtiques. Mal\u00adgr\u00e9 quelques retards de d\u00e9veloppe\u00adment attribu\u00e9s \u00e0 des prob\u00adl\u00e8mes de san\u00adt\u00e9, le b\u00e9b\u00e9 sem\u00adble suiv\u00adre une \u00e9vo\u00adlu\u00adtion nor\u00admale. Alexan\u00addra et son mari souf\u00adflent la pre\u00admi\u00e8re bougie de leur fils sans se douter de ce qui les attend.<\/p>\n\n\n\n<p>Les pre\u00admiers signes inqui\u00e9\u00adtants<\/p>\n\n\n\n<p>Un change\u00adment bru\u00adtal \u00e0 13 mois<\/p>\n\n\n\n<p>D\u00e8s 13 mois, Arthur com\u00admence \u00e0 mon\u00adtr\u00ader des signes pr\u00e9oc\u00adcu\u00adpants :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Dif\u00adfi\u00adcult\u00e9s d\u2019al\u00adi\u00admen\u00adta\u00adtion et de som\u00admeil<\/li>\n\n\n\n<li>Besoin con\u00adstant de la pr\u00e9sence parentale<\/li>\n\n\n\n<li>Peurs inex\u00adpliqu\u00e9es<\/li>\n<\/ul>\n\n\n\n<p>Un arr\u00eat du d\u00e9veloppe\u00adment \u00e0 16 mois<\/p>\n\n\n\n<p>Apr\u00e8s une hos\u00adpi\u00adtal\u00adi\u00adsa\u00adtion, la sit\u00adu\u00ada\u00adtion s\u2019ag\u00adgrave :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Perte du lan\u00adgage acquis<\/li>\n\n\n\n<li>R\u00e9gres\u00adsion dans les gestes quo\u00adti\u00addi\u00adens<\/li>\n\n\n\n<li>Appari\u00adtion de com\u00adporte\u00adments typ\u00adiques de l\u2019autisme (st\u00e9r\u00e9o\u00adtyp\u00adies)<\/li>\n<\/ul>\n\n\n\n<p>Le par\u00adcours du com\u00adbat\u00adtant des par\u00adents<\/p>\n\n\n\n<p>Des nuits dif\u00adfi\u00adciles impac\u00adtant le tra\u00advail<\/p>\n\n\n\n<p>Alexan\u00addra racon\u00adte : \u201cPour moi c\u2019\u00e9\u00adtait dif\u00adfi\u00adcile de tra\u00advailler la journ\u00e9e quand on ne dor\u00admait pas la nuit. Je cul\u00adpa\u00adbil\u00adi\u00adsais \u00e9nor\u00adm\u00e9\u00adment.\u201d<\/p>\n\n\n\n<p>La qu\u00eate du diag\u00adnos\u00adtic<\/p>\n\n\n\n<p>Mal\u00adgr\u00e9 l\u2019\u00e9v\u00adi\u00addence que \u201cquelque chose \u00e9tait dif\u00adf\u00e9rent\u201d, obtenir un diag\u00adnos\u00adtic offi\u00adciel prend du temps. Alexan\u00addra souligne l\u2019im\u00adpor\u00adtance du sou\u00adtien famil\u00adial et pro\u00adfes\u00adsion\u00adnel durant cette p\u00e9ri\u00adode.<\/p>\n\n\n\n<p>Appren\u00addre \u00e0 voir la dif\u00adf\u00e9rence comme une richesse<\/p>\n\n\n\n<p>Dix ans apr\u00e8s la nais\u00adsance d\u2019Arthur, Alexan\u00addra porte un regard nou\u00adveau sur son exp\u00e9ri\u00adence :<br>\u201cJ\u2019ai besoin de ne pas le r\u00e9sumer \u00e0 ses trou\u00adbles autis\u00adtiques. Au con\u00adtraire, la dif\u00adf\u00e9rence est une richesse.\u201d<\/p>\n\n\n\n<p>Con\u00adclu\u00adsion : Un mes\u00adsage d\u2019e\u00adspoir pour les autres par\u00adents<\/p>\n\n\n\n<p>Le t\u00e9moignage d\u2019Alexan\u00addra mon\u00adtre qu\u2019au-del\u00e0 des d\u00e9fis quo\u00adti\u00addi\u00adens, \u00eatre par\u00adent d\u2019un enfant autiste peut aus\u00adsi \u00eatre source d\u2019en\u00adrichisse\u00adment per\u00adson\u00adnel. Son par\u00adcours illus\u00adtre l\u2019im\u00adpor\u00adtance de l\u2019ac\u00adcep\u00adta\u00adtion et de l\u2019adap\u00adta\u00adtion, tout en gar\u00addant espoir pour l\u2019avenir. Ce r\u00e9c\u00adit offre un mes\u00adsage de sou\u00adtien aux autres par\u00adents dans la m\u00eame sit\u00adu\u00ada\u00adtion, rap\u00adpelant qu\u2019avec de l\u2019amour, de la patience et un accom\u00adpa\u00adg\u00adne\u00adment adap\u00adt\u00e9, il est pos\u00adsi\u00adble de trans\u00adformer les dif\u00adfi\u00adcult\u00e9s en oppor\u00adtu\u00adnit\u00e9s de crois\u00adsance pour toute la famille.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Alexan\u00addra, maman d\u2019Arthur, 10 ans, nous livre un t\u00e9moignage poignant sur son par\u00adcours de m\u00e8re d\u2019un enfant autiste. Entre cul\u00adpa\u00adbil\u00adit\u00e9, inqui\u00e9\u00adtudes et moments de joie, elle nous racon\u00adte com\u00adment elle\u2026 <\/p>\n","protected":false},"author":1,"featured_media":3546,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"wp_typography_post_enhancements_disabled":false,"footnotes":""},"categories":[73],"tags":[3826,3825,3828,3832,3831,3827,3829,3833,1545,3830],"class_list":["post-3545","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-on-en-parle","tag-adaptation-parentale","tag-autisme-infantile","tag-bien-etre-parental","tag-developpement-de-lenfant","tag-diagnostic-autisme","tag-difference-comme-richesse","tag-gestion-du-sommeil","tag-parcours-familial","tag-soutien-familial","tag-temoignage-de-parent"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.7 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>\u00catre m\u00e8re d&#039;un enfant autiste : le combat quotidien d&#039;Alexandra - 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